Ready for even MORE honest caregiver conversations?  Become a supporter of "Confessions of a Reluctant Caregiver" and unlock bonus episodes, behind-the-scenes peeks, and resources you won't find anywhere else! Plus, your support makes this podcast possible!  Sign up at https://www.buzzsprout.com/2101429/subscribe**********************************************************************************************Ali Ahmadi's caregiving journey began unexpectedly when his mother-in-law was diagnosed with stage four lymphoma cancer over seven years ago. As a former Navy aviator and aerospace engineer, Ali prided himself on navigating difficult situations. However, nothing could have prepared him for the challenges of caring for his ill mother-in-law while balancing work and family responsibilities. Ali and his wife decided to bring her into their home without hesitation. Still, they soon found themselves overwhelmed trying to manage her complex medical needs and navigate the healthcare system alone.At his wit's end, Ali was introduced to the TCARE protocol. Developed by researchers at the University of Wisconsin-Milwaukee, TCARE helped Ali and his family better understand the emotional toll of caregiving through clinical assessments. To Ali's surprise, the recommended care plan focused on marriage counseling rather than just medical support. This unexpected recommendation opened Ali's eyes to how caregiving impacted every aspect of his life. Through TCARE, Ali also discovered local resources he didn't know existed, like free family counseling. Inspired by the difference TCARE made, Ali developed the program into the caregiver support platform it is today.Now, Ali dedicates his career to helping other caregivers avoid burnout through TCARE's individualized support plans and focus on preventing emotional hardships. Driven by his caregiving experiences and commitment to family, Ali continues working tirelessly to validate caregivers' challenges and connect them with the resources needed to care for their loved ones without sacrificing their well-being.About Ali:Ali Ahmadi is a veteran of three venture-backed tech startups, having raised over $100 million in funding. A former U.S. Naval Aviator, he holds an M.S. and B.S. in Aerospace Engineering from Embry-Riddle Aeronautical University and an Executive MBA from Washington University in St. Louis. Ahmadi has vast experience in the Software-as-a-Service (SaaS) industry and has developed strategic partnerships with Fortune 100 companies, including Microsoft, RGA, PwC, SAP, Salesforce, McKinsey, and Aflac.Currently, he serves as the CEO and Co-Founder of TCARE, a company that provides a CMS-approved platform aimed at reducing family caregiver burnout and delaying nursing home placement through predictive analytics. TCARE has formed significant partnerships with companies such as Aflac, BlueCross BlueShield, Microsoft, Unum, Anthem, Cigna, and UnitedHealthcare.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Ready for even MORE honest caregiver conversations?  Become a supporter of "Confessions of a Reluctant Caregiver" and unlock bonus episodes, behind-the-scenes peeks, and resources you won't find anywhere else! Plus, your support makes this podcast possible!  Sign up at https://www.buzzsprout.com/2101429/subscribe**********************************************************************************************Paul Ptashnick shares his personal journey as a caregiver for his aging parents, both battling Parkinson's disease. His caregiving role intensified in his late 30s, especially after his father's significant fall. Navigating the healthcare system, Paul made tough decisions about his father's care facilities. Balancing work and caregiving, he highlights the importance of consistent caregivers for his parents.Amid trials, Paul addresses caregiving's financial and mental toll. He emphasizes support systems, suggesting home healthcare and care concierge services. Paul advocates adaptability, learning quickly, ensuring interaction and mobility for parents. Despite challenges, he urges caregivers to treasure joy, prioritize personal happiness, take trips, and enjoy simple pleasures.Paul's candid sharing offers invaluable insights into the reality of male caregiving, particularly for those managing the progression of diseases like Parkinson's. His story is a testament to the significance of open communication, persistence in advocacy, and the delicate balance between caring for loved ones and self-care.About Paul:Paul Ptashnick is a freelance copywriter and fractional marketer focused on B2B startups in the InsurTech, FinTech, and AgeTech spaces. In addition, Paul’s wife Ana is also an entrepreneur, opening Red Apron Charcuterie in 2023.When Paul and Ana aren’t working or playing with their fur baby Marty, they are usually traveling. They have visited Peru many times and have also spent time in England, Ireland, France, Colombia, and Mexico.For Paul’s 50th birthday, they have another European vacation planned with stops in Germany, Switzerland, Austria, and Croatia.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Subscriber-only episodeThank you for your support! Here's the link to watch the behind-the-scenes bonus episode on YouTube! https://youtu.be/RRjvSfV6LrU💙 JJ and Natalie Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Subscriber-only episodeThank you for your support! Here's the link to watch the behind-the-scenes bonus episode on YouTube! https://youtu.be/z5kM6OKC0wM💙 JJ and Natalie Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

This week, we're giving you all an update on our caregiving journeys—kind of like a quarterly catch-up! We chat about the hurdles of advocating for our mom's medical needs and getting her to appointments. By sharing our stories, we hope to help you learn about Medicaid benefits and the importance of speaking up. We also dive into the emotional side of caregiving, from tough moments to finding humor and healing through sharing tales.We get real about family dynamics as our sister Emilie steps back from caregiving. We respect her decision while recognizing the changes it brings. We touch on experiences with hospice care, the financial strains on caregivers, and our push for tax credits to honor unpaid family caregivers. Throughout, we aim to uplift and connect with you by sharing our honest caregiving highs and lows.On a personal note, Natalie opens up about her worries about her husband Jason's upcoming cancer scans. Even with palliative care, the shadow of cancer affects our marriage. In the end, this episode is all about community, self-care, and navigating the maze of caring for our loved ones.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Lisa Hale shares her journey navigating a lifetime of caregiving responsibilities. From her early experiences as the oldest sibling in a single-parent household to later years caring for her mother following a stroke, Lisa recounts managing various care roles simultaneously while juggling her own life. Lisa shares about stepping into the roles of a stepmother to a son with special needs and a wife to a husband with multiple sclerosis, which she consciously chose. Despite sometimes wondering about her choice and longing for 'me time', Lisa remains proud and resilient. Lisa's story reflects the strength and love of a caregiver. She was the eldest sibling in a single-parent household and took on responsibilities early on. When her mother suffered a debilitating stroke, Lisa cared for her while juggling multiple roles and trying to maintain her own life. She also became a stepmother to a son with special needs and a wife to a husband diagnosed with multiple sclerosis, requiring unwavering attention and support.Lisa's journey highlights the importance of mental health and counseling for caregivers. Seeking professional help provided a safe space to process emotions, gain coping strategies, and find support. Maintaining relationships, friendships, and connections is also crucial, even amidst challenges. About Lisa: Lisa Hale is a 57-year-old dedicated caregiver, wife to a man living with autism and MS, and stepmother to an adult stepson also diagnosed with Autism. She is professionally the PR and Marketing Specialist for Lakeland Care, Inc., a managed care program that collaborates with the Family Care Program in Wisconsin. Their mission is to provide support and services to the frail elderly and adults with physical, developmental, or intellectual disabilities.Demonstrating her commitment to self-improvement and providing a better life for her family, Lisa returned to college at the age of 50. She successfully attained her Business Administration degree with a concentration in Marketing in December 2021.Despite her busy schedule, Lisa loves crochet and reading, even though time for such hobbies has become a rarity. A geeky pursuits and television fan, she enjoys shows like Doctor Who, Buffy the Vampire Slayer, and Xena Warrior Princess.Connect with Lisa:Facebook: https://www.facebook.com/profile.php?id=100093621925611Linked In: https://www.linkedin.com/in/lisa-hale-23aa87a/Other: www.lakelandcareinc.com, www.pyxhealth.comSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Jennifer Jenkins embodies the unwavering spirit of a lifelong caregiver. Her journey began at just 15, caring for her grandmother after cancer surgery. Later, tragedy struck when her brother, James, was wounded in Iraq.  Alongside raising her infant child, Jennifer became his full-time caregiver and a tireless advocate for wounded veterans.  Her responsibilities extended to her mother following a stroke, and despite these immense challenges, Jennifer welcomed a premature daughter into her life.Jennifer emphasizes the importance of counseling and self-care, including journaling and yoga, throughout her incredible journey.  While gradually transitioning some of her brother's care to his partner, she remains a dedicated caregiver and an inspiration to those balancing family and the extraordinary demands of caregiving. Jennifer's story is a testament to resilience, compassion, and the necessity of support for those who dedicate their lives to caring for others.About Jennifer:Jennifer Jenkins understands the complexities of being a full-time caregiver. “I  had to start from scratch finding the answers,” says Jennifer. “My brother’s care required a unique set of skills that my background did not include. That’s why the  connections I’ve made through Wounded Warrior Project® (WWP) have been invaluable.” In 2005, her brother James was wounded in combat while on a mission with his Army Stryker Brigade in Iraq. James endured a traumatic brain injury (TBI), partial hearing and vision loss, damage to his spine, and post-traumatic stress disorder (PTSD).  Jennifer’s journey has helped her understand the sacrifices, challenges, and unmet needs that caregivers face daily. Her message of love and support is clear and empathetic: “I do not see my brother’s needs as a burden. If I had to drop everything to help him, I would, and, quite frankly, I sometimes have. Thankfully,  Wounded Warrior Project is always there to help us, too.” Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Jessica Patay shares her journey as a caregiver for her son, Ryan, who was diagnosed with Prader-Willi Syndrome at five weeks. Prader-Willi Syndrome is a rare genetic disorder that requires 24/7 supervision and care due to its associated symptoms, including low muscle tone, delayed milestones, and an insatiable food drive. Jessica talks about the difficulties she faced with her newborn, Ryan, who was unable to cry or suck and needed a feeding tube and occupational therapy. Managing Ryan's anxiety about eating is an ongoing challenge that requires constant monitoring of the kitchen.Jessica discusses the impact of her son Ryan's condition on her family and the importance of maintaining a healthy balance. She prioritizes spending one-on-one time with her other children and taking trips without Ryan. Jessica also emphasizes the importance of having a supportive community and resources for caregivers. She has created an organization called "We Are Brave Together" to provide a platform for caregivers of disabled children to connect and find support.Jessica plans to set up a care plan for her son Ryan before she and her husband become incapacitated or pass away. She also emphasizes the need to take breaks as a caregiver and empower their children to survive without them. About Jessica:Jessica Patay is the founder and executive director of We Are Brave Together (WABT), a 501(c)(3)nonprofit organization that supports caregiving moms with children of all types of disabilities and neuro-diverse diagnoses. In addition, she is a sought-after speaker, podcast guest, writer retreat coordinator, fundraiser, mother of three, social influencer, and a champion of self-care practices and their positive effect on motherhood. Jessica excels at creating and supporting communities of caregiving moms, and she is a visionary for the disability community worldwide. Jessica’s mission is to combat the isolation and burnout that these moms and their families face by creating supportive, resourceful, and empowering communities and meaningful connections. Her vision is that every family in the disability community is strengthened, equipped, and inspired for their unique journey. This vision has fueled WABT’s growth in 6 years into an international community of over 2200 moms, representing all 50 states and 24 countries. Jessica has helped launch dozens of support groups throughout the U.S., New Zealand, and Australia. To extend her outreach, Jessica hosts a podcast, “Brave Together with Jessica Patay,” which offers a library of inspirational stories and resources for the disability community.Connect with Jessica:Web https://www.wearebravetogether.org/Facebook https://www.facebook.com/wearebravetogether/Instagram https://www.instagram.com/wearebravetogether/Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Jennifer O'Brien, author of "The Hospice Doctor's Widow," joins the podcast to share her deeply personal story of caregiving for her terminally ill husband, Bob. A hospice physician himself, Bob's diagnosis of advanced renal cell carcinoma forced them to confront their own mortality and navigate the healthcare system together. Jennifer, equipped with her own experiences with loss and a career in healthcare administration, played a vital role in planning for Bob's end-of-life wishes and her future.Their journey wasn't solely focused on medical procedures and appointments. Jennifer highlights the concept of "Precious Time" - a term Bob coined to describe the irreplaceable moments left with a terminally ill loved one. She emphasizes the profound significance of these moments, fostering emotional connection and expression in a way that transcends the challenges of the situation. Their proactive approach, characterized by open communication and practical planning, not only ensured Bob's wishes were met but also enriched the quality time they shared. Even after Bob's passing, Jennifer finds solace in the plans he made for her well-being, a testament to his love and foresight.Driven by her experience and a desire to help others, Jennifer has poured her grief and learnings into "The Hospice Doctor's Widow." This powerful book sheds light on family caregiving and end-of-life planning, advocating for open communication and a balanced approach between hope and reality when facing terminal illness. This episode is a must-listen for anyone facing a similar situation, offering invaluable insights, practical tips, and the comforting reminder that even in the face of loss, love and connection can leave an enduring impact.About Jennifer:In her 35+ years in healthcare, Jennifer O’Brien has served as a practice management consultant to physicians, CEO for two large medical practices, and held administrative roles in three academic medical centers. She earned her Bachelor’s degree from Boston University and a Master’s in Organization Development from Loyola University – Chicago. Jennifer has authored 50+ articles in professional publications and peer-reviewed journals.Her art journal, kept during her late husband's 22-month illness, was published as The Hospice Doctor's Widow: A Journal in February 2020. It has won several awards, including a Nautilus silver award in the Death & Dying/Grief & Loss category, a Next Gen Indie Book gold for Relationships, an IPPY bronze for Gift, and an International Impact gold for the book's interior design. Jennifer now shares her story, wisdom, and experience to help others understand the role of family caregivers and the importance of end-of-life preparations.Connect with Jennifer:Website: https://www.hospicedrswidow.com/ Instagram: https://www.instagram.com/hospicedoctorsSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

In this frank and insightful conversation, we discuss the emotional challenges and hard realities of caregiving with Karyl Cunningham. Karyl was married for 18 years before her husband was diagnosed with stage three B lung cancer, a journey she describes as a 'crazy ride.' Having worked in the non-profit sector for over 25 years, Karyl shifted from her role as an Executive Director to a full-time caregiver. The conversation goes deep into her struggles to balance her responsibilities, her transformation into an in-home nurse, and the immense pressure to provide the best care possible. Karyl also reflects on gaining control of her life back after her husband's passing and her subsequent self-care journey. This episode highlights the importance of caring for oneself during and after a long-term care experience and the many different forms that caregiver support can take.About Karyl:Originally from Toledo, OH., Karyl Cunningham has worked in the non-profit field for over 25 years. Karyl has always had a passion for involving herself in this type of work for the greater good of society, people, and the communities in which they live. Karyl feels that the beauty of the non-profit field is that you can present a different picture and impact of your mission while still being aligned with it, allowing people to connect in ways they usually would not, which leads toward creating an environment of community connection. Karyl served as president/CEO of the historic Emanuel Community Center for 8 years and found that her greatest achievement was re-igniting the light of Emanuel and its purpose in a changing OTR community. With a great staff, board and volunteers, the center found itself amidst newfound recognition, but more importantly, living up to a mission of purpose and impact. Later, Karyl served as the director of the Cincinnati YMCA’s Black and Latino Achievers and finally wrapped up her career with American Red Cross and retired in 2021. Has as received various local, regional, and state accolades for her work in the non-profit field.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Charisma Sydnor's path crossed with Cole's at a rehab center following his teenage spinal cord injury; their professional rapport blossomed into romance and they wed in 2020. Taking over from his mother, Charisma adapted to the comprehensive caregiver role, focusing on fostering independence for Cole while ensuring their connection thrives beyond her caregiving responsibilities. They openly celebrate their life together on social networks, challenging preconceptions about disability and relationships. Their shared narrative delves into the seamless transition from dating to matrimony, weaving in the complexities and dedication involved in caregiving. Charisma speaks to establishing a healthy balance of duties and intimacy, highlighting continuous dialogue, self-care, and an optimistic perspective as cornerstones of their unique partnership. She emphasizes that a disability is not a hindrance, but rather a unique aspect of a vibrant and fulfilling life.About Charisma:Charisma Sydnor, 29, has lived most of her life as a native of Richmond, Virginia. Before becoming an entrepreneur, she pursued her master’s in Occupational Therapy at Shenandoah University. The success of her and her husband’s business led her down a new and exciting path where she was able to use her platform for a broader purpose.  Together they started their vlog to bring people into their lives, their relationship, to answer some questions about how they navigate the world with some of the behind-the-scenes stuff people typically don't see, and hopefully raise awareness surrounding accessibility and dating in a wheelchair.Outside of their channel, Charisma uses her Instagram to share what it is like being a caregiver to her husband, as well as tips and tricks to maintain a healthy mind, body, and soul while caring for someone.Connect with CharismaInstagram: https://www.instagram.com/happilycharisma/?hl=enLinked In: https://www.linkedin.com/in/charisma-sydnor-96632411b/YouTube: https://www.youtube.com/channel/UCA5Zfb-OOm7eDHHa8iu9izQSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Marty Schreiber has dedicated his life to advocating for Alzheimer's patients and their caregivers. As the former governor of Wisconsin and author of the acclaimed memoir "My Two Elaine's", Marty draws from his own deeply personal experience as a caregiver for his wife of 61 years, Elaine. For eight years, Marty cared for Elaine in their home as her Alzheimer's progressed, but he now admits he was unprepared for the physical and emotional toll it would take. Marty candidly shares his struggles, from trying to keep Elaine in his world to nearly working himself to exhaustion. He also opens up about difficult decisions like placing Elaine in assisted living and the guilt he still feels over not supporting his children through the process. However, Marty channels his regrets into wisdom, urging caregivers to accept help, join their loved one's reality, and focus on living fully themselves to best support their person. Through humor, heartache, and hard-won insight, he offers invaluable insights aimed at aiding fellow caregivers to embrace support, understand the dual realities of their loved ones, and nurture their own well-being for more effective care.About Marty:Former Wisconsin Gov. Martin J. Schreiber is an award-winning crusader for Alzheimer’s caregivers and persons with dementia. Reaching audiences nationwide at live events and through various forms of media, Marty uses humor and compassion as he shares lessons from his ongoing, decade-plus journey as a caregiver. His speaking tour takes him to conferences, civic organizations, senior communities, libraries, and more around the country. He has given more than 300 presentations since launching his awareness campaign in late 2016. Whether in Texas, Idaho, New York, Missouri, Florida, Ohio, or closer to home, caregivers tell Marty that his message encourages them and hope that they can manage their challenging situation.Marty’s book, My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver, is winning acclaim from caregivers across the country. It was rated as the No. 11 “Best Alzheimer’s Book of All Time” by bookauthority.org and was named to Caring.com’s list of “Best Caregiving Books” of both 2017 and 2018. Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

In this episode, Jean Hartnett shares her experience caring for her elderly parents. Jean hails from a large Irish Catholic family and has an extensive healthcare background spanning over three decades. At 83, Jean's mother suffered a stroke, which led to Jean taking a job hiatus to provide care for her parents. She talks about the complexities of managing care with her siblings and balancing the needs of both parents. Jean moved in with her parents to provide round-the-clock care and faced the hardship of losing her father just months after her mother's stroke.Jean utilizes her healthcare expertise to navigate her parents' care journey. The understanding of intricate systems like Medicare, as demonstrated by Jean, can lead to optimized benefits and comprehensive care. Knowledge of funding options and relevant laws allows caregivers to make well-informed decisions, ensuring the best care.In this episode, you will be able to:Anticipatory grief is real for caregivers, and acknowledging difficult emotions is part of the caregiving process.Uncover the key healthcare regulations every caregiver should know to ensure the best care for your loved ones.Reimagining family dynamics. Explore the complexities of family relationships and learn about reimagining family Communication among caregivers is key to coordinating care schedules and updates on the care recipient's condition.Self-care, such as yoga, is important for caregivers to manage stress and prevent burnout.About Jean:Jean Hartnett is a visionary healthcare leader with over 30 years of executive experience serving older adults. Known for inspiring new thinking and repositioning organizational strategy, she is recognized for significantly improving seniors' quality of care. With expertise in trauma-informed care and adverse childhood experiences (ACEs), Jean brings a compassionate, evidence-based approach to support healing journeys. She has worked as a healthcare executive, professor, consultant, and strategic advisor for health systems across the United States. She is a dynamic communicator, sharing real-world senior care experiences with a captivating style. Jean holds a Bachelor of Science in Social Work and a Master's in Health Services Administration. She is a Certified Dementia Practitioner, Certified Yoga Instructor, and Certified Nursing Assistant.Connect with Jean: Instagram Facebook LinkedInYouTubeSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

This week's episode showcases the incredible journey of Betsy Wurzel, a lifelong caregiver who began caring for others at the tender age of 4. Betsy's unwavering dedication is evident as she recounts her experiences caring for her mother-in-law, father, and her husband Matthew, who was diagnosed with early-onset Alzheimer's at the age of 56.Throughout her caregiving journey, Betsy emerged as a fierce advocate, championing the cause of Alzheimer's awareness and support. She pioneered the "Kick Alzheimer's" movement, igniting a spark of hope and rallying others in the face of dementia. Balancing the demands of a career and being a full-time caregiver, Betsy found solace and strength with the invaluable support of her son Josh.In the face of countless challenges spanning many years, Betsy's resilience and unwavering compassion shine through. Her story serves as an inspiration, reminding us of the power of resilience and compassion during life's most trying moments.What you will learn from this episode:1. Education is important for caregivers to understand a loved one's diagnosis better and how to manage behaviors.2. The need to advocate for yourself and your loved ones, especially regarding care needs and services.3. That caregiving is a marathon, not a sprint, and taking care of your mental health along the way is important.4. Celebrate your loved one's life daily and on special occasions, even after passing. Don't forget to honor their memory.5. Early-onset Alzheimer's and other dementias are more common than people realize and can impact people of any age.About Betsy:Betsy Wurzel has been a caregiver her whole life. At age 4, she decided to become a nurse when her mother battled pneumonia. She worked as an LPN for many years while also holding retail and preschool education roles. In 1980, she married Matthew Sloan, and they had a son named Josh in 1984. Betsy became an advocate due to Josh's cognitive disability, and later extended her advocacy to her mother-in-law with Alzheimer's and her husband with memory issues. To raise awareness about Early Onset Alzheimer's and caregiving, Betsy recorded and shared her experiences in car videos. In June 2018, she was recognized by Jeanne White, Station Manager of PWTRN, who invited her to speak on her Connect Show. By September 2019, Betsy had her own show, "Chatting with Betsy," where she discusses various topics with guests. In February 2019, Betsy founded the "# Kick Alzheimer's Ass Movement Group" on Facebook, creating a supportive community for caregivers with help from her friend Lorri Lorraine Lepore. Her tireless efforts were acknowledged in November 2021 when she received the Caregiving Visionary Advocate Award from Caregiving.com.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Debbie Compton, a certified caregiving consultant, Alzheimer's Association educator, speaker, and author of 9 books, shares her invaluable experience in caring for her parents and in-laws, who faced various conditions, including dementia, Alzheimer's, Parkinson's, and vascular dementia.Debbie recounts her journey, starting with her mom as the first to exhibit signs, eventually diagnosed with vascular dementia. She delves into the challenges of relocating her parents for closer care. Additionally, she compassionately tended to her father, who was diagnosed with Parkinson's, and her mother-in-law, who battled Alzheimer's. Balancing full-time work and caregiving responsibilities was arduous, ultimately leading her to decide to leave her job to provide full-time care for her parents.Throughout her caregiving experience, Debbie found solace in her faith, allowing her to navigate the most challenging times. She also highlights the invaluable resources she has created, such as her coloring books "Color Me Calm" and "Faith Lives Here," which offer support to caregivers and individuals with dementia.In this episode, you will learn:Why It's important to know the person you're caring for - their likes, dislikes, personality, history, etc. which fully helps you provide the best care.How faith and relying on scripture can help caregivers in getting through difficult times.Focus on a person's abilities, not limitations. Enjoying activities like music and dancing can enhance mood and foster connection.Siblings and family support matter. Assign tasks based on individual strengths.Resources like Debbie's coloring books can benefit both caregivers and those with dementia by providing mental stimulation and comfort.About Debbie:Debbie Compton is a three-time caregiver for parents with different forms of Dementia, Alzheimer’s, Parkinson’s, and Vascular Dementia. She is a Certified Caregiving Consultant, Certified Caregiver Advocate, Educator for the Alzheimer’s Assoc. speaker, and author of 9 books. Debbie’s first book, Caregiving: How to hold on while letting go, offers actionable steps for caregivers and questions to ask doctors, in-home caregivers, facilities, and more. It is full of humor and inspiration.Debbie founded The Purple Vine LLC, whose mission is to empower caregivers with the tools and strategies needed to reduce stress, block burnout, and learn to laugh again. This is accomplished through workshops, speeches, weekly newsletters, blog posts, and private 1:1 Zoom meetings.Connect with Debbie:www.linkedin.com/in/debbiedcomptonwww.facebook.com/Caregiving.BookSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

In this episode, we welcome Jean Lee, author of the memoir Alzheimer's Daughter. Jean opens up about her emotional journey of caring for both her parents as they battled Alzheimer's in their 80s. As a third-grade teacher, she noticed their health and abilities declining and, along with her sister, faced the tough task of convincing them to transition from their home to assisted living facilities - a decision that brought much guilt.Diagnosed on the same day, Jean's parents' journey through Alzheimer's was not only filled with challenges but also highlighted the beauty of their enduring love story. Despite the sorrow of losing her parents in a memory care unit, Jean found solace in writing her memoir and co-founding AlzAuthors. This organization supports authors who are caregivers. Her experiences also led her to establish alzauthors.com, a platform for authors sharing personal narratives about Alzheimer's and dementia. Through these endeavors, Jean transforms her personal struggles into support and inspiration for others on similar journeys.In this episode you will learn: 1. Understanding and respecting a loved one's feelings and autonomy is essential while transitioning them to a memory care facility.2. Forming a relationship with your loved one's health providers and becoming part of their care team is invaluable.3. Sharing the caregiving role amongst family members eases the burden and facilitates decision-making.4. Prioritize self-care while you are in a caregiving role.5. Sharing your caregiving journey through writing or speaking can be cathartic and beneficial for others in similar situations.About Jean:After the publication of Alzheimer’s Daughter, Jean connected with other authors of Alzheimer’s books, to co-found AlzAuthors.com with the goal of eliminating the stigma and silence often accompanying a diagnosis. AlzAuthors enables caregivers and those living with memory impairment to find written resources – memoirs, novels, nonfiction, children’s books and caregiver guides – which educate and enlighten. AlzAuthors, a 501(c)3 nonprofit, is managed by six daughters of dementia and has posted weekly essays from over 350 authors with direct links to their books, all written from personal experience with Alzheimer’s and dementia. Three years ago, they launched an award-winning podcast entitled Untangling Alzheimer’s and Dementia: An AlzAuthors Podcast. Their newest initiative brings real books to real people in real places through Custom Caregiver Collections, placing handcrafted, table-top lending libraries in locations where people whose lives have been impacted by Alzheimer’s and dementia gather.Connect with Jean:Website: Alzheimersdaughter.com ; AlzASupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

In this episode of the Confessions of a Reluctant Caregiver podcast, we have a heart-to-heart conversation with Barry Jacobs. Barry is a clinical psychologist, family therapist, and a principal for a national healthcare consulting firm. He shares his personal experiences as a caregiver for his father and stepfather, both of whom suffered from severe illnesses. This touching journey explores family dynamics and emotional challenges caregivers face and highlights the importance of resilience and self-care in providing adequate care for others.Barry's unique perspective as a clinical psychologist, family therapist, writer, blogger, and caregiver shines through as he discusses his journey and how it inspired him to help other families facing similar experiences. We delve into the impact of caregiving on personal life, family dynamics, and marital relationships, emphasizing the significance of understanding and managing emotional reactions in challenging caregiving situations.In this episode, you will discover:  Barry's personal experience as a caregiver, starting at a young age Issues of family dynamics during caregiving Impact of caregiving on marital relationship Reflections on personal experiences and perspectives in caregivingAbout Barry:Dr. Barry J. Jacobs, Psy.D., is a renowned clinical psychologist and family therapist with a significant career in healthcare consulting at Health Management Associates. He spent over two decades as the Director of Behavioral Sciences at the Crozer-Keystone Family Medicine Residency Program. An accomplished author, Dr. Jacobs has published several books on relationships and caregiving, including titles under AARP. He's recognized for his 600+ presentations on family caregiving and holds an honorary board position at the Well Spouse Association. In 2016, he received a lifetime achievement award from the Collaborative Family Healthcare Association. Before his psychology career, he was a journalist for The Village Voice and Rolling Stone Press. He's been an AARP.org blogger since 2013. Dr. Jacobs holds a bachelor’s degree from Brown University and a doctorate in psychology from Widener University.Connect with Barry:XLinkedInFacebookAARP.org Caregiving Expert PageBooks: The Emotional Survival Guide for Caregivers—Looking Out For Yourself and Your Family While Helping an Aging Parent (Guilford, 2006):Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

In our final episode of 2023, we're taking a moment to reflect on what we've learned about caregiving and ourselves throughout the year. We'll also share some amazing insights from our incredible guests. Join us as we dive into the world of caregiving and discover how to strike a balance between self-care and nurturing relationships.Caring for someone can be challenging, but it's important to find harmony between our personal obligations and the needs of those we care for. It's all about understanding, being patient, and showing deep respect for the person in our care.We also explore the dynamics of sibling relationships in the caregiving journey. Sometimes, sharing responsibilities can strain our bond with our siblings. But we can foster understanding and maintain a strong connection through open dialogue and mutual respect. Remember, despite our differences, we can find common ground and preserve harmony by cherishing our shared love for the person we’re caring for.In this episode, you will be able to:Overcoming caregiving challenges and gaining valuable lessons.Balancing caregiving roles while nurturing important relationships.Understanding the impact on sibling relationships during caregiving.Prioritizing self-care for enhanced well-being as a caregiver.Embracing lessons learned and finding resolutions as a caregiver.📖 Link to the article mentioned in the show: When Medicare thinks you're dead... but you're not. (confessionsofareluctantcaregiver.com)🥰 Big thanks to our sponsor, Tena, for supporting this episode! Try Tena yourself here: https://buy.tena.us/link/1702396455795b19bcf4d/aebb325b-ab56-384c-3f88-f940d48f8663?Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Kitty Norton, the fearless filmmaker behind the thought-provoking documentary "Wine, Women, and Dementia," embarked on a life-altering journey as a dementia caregiver. With resilience and grace, she found herself thrust into this role, initially unaware of the subtle behavioral changes in her mother that indicated the onset of dementia. This unexpected twist profoundly reshaped Kitty's life.She left her life in Los Angeles and cared for her mother in Portland, Oregon. Despite the emotional upheaval of this responsibility, Kitty found solace and moments of levity in dementia care. Through her candid blog entries, insightful videos, and poignant documentary, Kitty offers a unique perspective on caregiving for dementia. Her dedication and relatable storytelling make her an empowering figure in the caregiving community, providing solace and inspiration to others facing similar challenges.In this episode, you will be able to:• Overcoming caregiving challenges: Insights and strategies for navigating the complexities of caring for a loved one with dementia.• Harnessing humor in caregiving: Discover the power of laughter in creating moments of connection and joy amidst dementia caregiving challenges.• Embracing self-care for family caregivers: Practical tips and techniques to prioritize your well-being while caring for a loved one with dementia.• Navigating financial constraints and insurance: Tackle financial hurdles and explore available resources to support dementia caregiving.About Kitty:In 2016, Kitty Norton left her job as an NBC assistant editor in Los Angeles to care for her mother with dementia in Portland. She started Stumped Town Dementia, a blog that resonated with readers worldwide, sharing tales of dementia life. Kitty documented her journey with her mother in videos and, after her passing in 2021, created her first documentary feature film, Wine, Women, and Dementia. The film honors their journey and raises awareness of dementia caregiving, letting others in similar situations know they are not alone.Connect with Kitty:TwitterTikTokInstagramFacebookWebsiteBig thanks to our sponsor, Tena, for supporting this episode! Try Tena yourself here: https://buy.tena.us/link/1702396455795b19bcf4d/aebb325b-ab56-384c-3f88-f940d48f8663?Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network

Allison Breininger, an experienced educator with an MA in Education, took on a new role at 31: caregiver for her husband, Sean, who was diagnosed with the rare genetic disease Fanconi Anemia. Throughout the past eleven years, she supported him through a bone marrow transplant and various cancers. This journey made Allison realize the lack of support for caregivers, leading her to establish the non-profit, The Negative Space, to transform caregiver perception and assistance.The unexpected twist in their lives significantly challenged their resilience and threatened their dreams. Despite this, Allison's dedication to her husband and herself remained a shining light amidst uncertainty. As a resilient caregiver, she navigates the delicate balance between productivity and self-care amidst challenges. Her powerful story showcases the impact of love and resilience in adversity.In this episode, you will be able to:Find practical strategies to overcome caregiver challenges and get the support you need.Discover how caregiving affects mental well-being and learn practical steps for maintaining a healthy mindset.Discover the value of a strong support network and see how it enhances your caregiving journey.Discover ways to find rest and relaxation while caregiving.Discover tips for managing caregiving while prioritizing your well-being.About Allison:Allison Breininger holds an MA in Education and spent two decades in various roles within the field. At the age of 31, she became a caregiver for her husband, Sean, who was diagnosed with the rare genetic disease Fanconi Anemia. Throughout the past eleven years, she has supported him through a bone marrow transplant and battles with cancer affecting his tongue, throat, gums, bladder, and skin. This firsthand experience has shown her the vital yet overlooked and unsupported role of caregivers. Motivated by her insights, Allison established the non-profit organization, The Negative Space, to change the perception and support for caregivers.Through The Negative Space, Allison sheds light on caregiving realities, offers direct services to caregivers, and educates and equips their supporters with practical tools and strategies. She co-hosts the In Sickness podcast, provides individual coaching nationwide, facilitates support groups, partners with organizations, and sells caregiver gift boxes.Connect with Allison Website TwitterInstagramFacebookLinked InPodcast URLBlogSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network