This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.Event Alerts:Docs on Stuttering – May 8 (Use "PROUD25" at checkout for a free ticket)Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentaryPhilly Proud Stutter Gathering – May 19Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch!Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Bobby Glen shares his family's journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support. This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills. Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering.If you'd like to reach out to Bobby, you can email him at glennrw@gmail.com.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Maya, Caitlin, and Elliot are back to discuss stuttering on Survivor Season 48, Episode 8, and the latest twists and turns in the episode. From alliances and drama to strategic plays and surprise advantages, they break down all the key moments you won't want to miss.In this episodeRegister for Proud Stutter's Stuttering Awareness Week event on May 8Use promo code PROUD25 at checkout for a free ticket. -----Big thanks to Proud Stutter's recurring supporters: Jennifer Bolen, Jerry Slaff, Josh Compton, Pablo Meza, Matt Didisheim, Alexandra Mosby, Ingo Helbig, Jonathan Reiss, Jason Smith, Paige McGill, Wayne Engebretson, Swathy Manavalan, and Martha Horrocks.Learn more about Proud Stutter's impact campaign for its film project at proudstutter.org/impactIf you can become a monthly donor at $10 or more, we’ll give you access to ad-free episodes and bonus Proud Stutter+ content as a token of our thanks! Make your tax deductible gift at https://bit.ly/3xLezBk. Proud Stutter is proudly fiscally sponsored by Independent Arts & Media.Want to lean more about what Proud Stutter has to offer? Sign up here to stay in the loop and take advantage of our upcoming events, actions, and educational materials.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Maya is back with Caitlin Dietz and Eliot Goldstein to talk about Episodes 6 and 7 of Survivor Season 48. Highlights include discussions about Mitch, a contestant on the show who stutters, his social game and personal story, as well as strategic plays and alliances forming among the castaways. In the episodeSave the date for Proud Stutter's Stuttering Awareness Week event happening in San Rafael, CA on May 8. Details will be released soon!Check out the recap of Proud Stutter's latest event in Chicago in the Daily Northwestern.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Maya is joined again by friends Caitlin Dietz, her childhood friend, and Eliot Goldstein, friend and person who stutters to talk about stuttering on the current season of Survivor!Check out our feed for a recap of Episode 3!Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Maya interviews Philip, a contestant from Deal or No Deal Island, who shares his experience with stuttering on the reality TV show and how stuttering has impacted his life and career. Philip talks about the audition process, navigating gameplay, and forming relationships with other contestants, including Survivor's Parvati. He also touches on his background as a first-generation American and educator, his transition to becoming a personal trainer, and his aspirations in motivational speaking. Catch Deal or No Deal Island on Tuesdays on NBC.Announcements & Updates from Proud StutterSupport a filmmaker who stutters - Help Michael Turner celebrate the 10 year anniversary of his film during Stuttering Awareness WeekApril 9 - Register to Proud Stutter's free event in Chicago with Northwestern UniversityMay 8 & May 15 - Save the date for Proud Stutter's upcoming documentary events in San Rafael, CA with CA FilmPartnership cornerMarch 29 & March 30: Music and Theater tell the story of life with a stutter in the premiere of Tyler Eschendal’s solo show ACTIONS.April 1: Enroll for SPACE's Community & Arts programs this Spring. Learn more here.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Maya is joined by friends Caitlin Dietz, her childhood friend, and Eliot Goldstein, friend and person who stutters to talk about stuttering on the current season of Survivor!Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Elia Powers is a professor, podcast reporter and the author of 'Performing the News, Identity, Authority, and the Myth of Neutrality' exploring how journalists from historically marginalized groups navigate unspoken norms in the industry. Elia shares his personal journey as a journalist who stutters and his research on how the media landscape is changing, particularly through the inclusivity offered by podcasting. The conversation delves into the challenges and opportunities faced by journalists with non-standard speech, highlighting the importance of diverse voices in media.In this episodeElias book Performing the News: Identity, Authority, and the Myth of NeutralityWe’re grateful to Elia for sharing his story with us.  -----Big thanks to Proud Stutter's recurring supporters: Jennifer Bolen, Jerry Slaff, Josh Compton, Pablo Meza, Matt Didisheim, Alexandra Mosby, Ingo Helbig, Jonathan Reiss, Paige McGill, Wayne Engebretson, Swathy Manavalan, and Martha Horrocks.Learn more about Proud Stutter's impact campaign for its film project at proudstutter.org/impactIf you can become a monthly donor at $10 or more, we’ll give you access to ad-free episodes and bonus Proud Stutter+ content as a token of our thanks! Make your tax deductible gift at https://bit.ly/3xLezBk. Proud Stutter is proudly fiscally sponsored by Independent Arts & Media.Want to lean more about what Proud Stutter has to offer? Sign up here to stay in the loop and take advantage of our upcoming events, actions, and educational materials.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Gavin Zilvasi is the founder and chairman of the Tia Maria Foundation. He's also a freshman in college at Villanova University. Gavin talks about his early challenges with speech, the impact of bullying, and the mental resilience he developed. The Tia Maria Foundation supports students in Elizabeth, New Jersey and is awarding its first scholarship at the foundation's upcoming gala on February 28, which you can learn about here.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Ben Miller is a videographer and person who stutters. Ben spent most of his childhood in speech therapy. His mother is a speech-language pathologist.Maya met Ben at Sundance at the Proud Stutter event during the Festival. They both saw Ricky, which ended up winning the Jury Grant Prize for Best Director.How does a stutter impact one's personality? This is just one of the many questions Ben and Maya dissect in a thought provoking conversation between two media artists who stutter. They explore the challenges of editing stuttering in media and reflect on how stuttering shapes their communication and artistic expression. We’re grateful to Ben for sharing their story with us. Check out his reel of an art show he created here.-----Big thanks to Proud Stutter's recurring supporters: Jennifer Bolen, Jerry Slaff, Josh Compton, Pablo Meza, Matt Didisheim, Alexandra Mosby, Ingo Helbig, Jonathan Reiss, Paige McGill, Wayne Engebretson, Swathy Manavalan, and Martha Horrocks.Learn more about Proud Stutter's impact campaign for its film project at proudstutter.org/impactDo you know someone who stutters? Fill out Proud Stutter's survey here.If you can become a monthly donor at $10 or more, we’ll give you access to ad-free episodes and bonus Proud Stutter+ content as a token of our thanks! Make your tax deductible gift at https://bit.ly/3xLezBk. Proud Stutter is proudly fiscally sponsored by Independent Arts & Media.Want to lean more about what Proud Stutter has to offer? Sign up here to stay in the loop and take advantage of our upcoming events, actions, and educational materials.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Cody Dew is a professor, researcher, and person who stutters. Cody's research focuses on how perceived communication skills influence stereotyping of people who stutter in the workplace. How can disclosing your stutter help? What are some strategies to make work environments more inclusive for people with speech differences?Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Proud Stutter is going to Sundance! Join our creative team behind our upcoming documentary for a special event on January 25 at 5pm in Park City featuring award-winning filmmaker Reid Davenport (I DIDN'T SEE YOU THERE and LIFE AFTER). Get your free tickets today before they sell out!In this episodeDave Rodriguez is an experimental filmmaker who stutters. He made his way into filmmaking through the Miami punk scene and his areas of interest include the intersection of stuttering and experimental film. Dave explores the influence of generational trauma and neurological research on his films, notably 'Tartamudeo' and 'Disfluency Circuit.' Both Maya and Dave delve into the unique aesthetic choices in representing stuttering on screen, the challenges of academia, and impactful works by other filmmakers with disabilities, including Reid Davenport with his film I Didn't See You There.Dave's FilmsFor T A R T A M U D E O (2019): https://vimeo.com/video/336718520For Dysfluency Circuit (2024): https://vimeo.com/video/926613463*For the password to watch Dysfluency Circuit, email info@proudstutter.org.Reid's Films-Check out Reid's IMDB page here.We’re grateful to Dave for sharing his story with us.  -----Big thanks to Proud Stutter's recurring supporters: Jennifer Bolen, Jerry Slaff, Josh Compton, Pablo Meza, Dustin Wells, Alexandra Mosby, Ingo Helbig, Jonathan Reiss, Paige McGill, Wayne Engebretson, Swathy Manavalan, and Martha Horrocks.Learn more about Proud Stutter's impact campaign for its film project at proudstutter.org/impactIf you can become a monthly donor at $10 or more, we’ll give you access to ad-free episodes and bonus Proud Stutter+ content as a token of our thanks! Make your tax deductible gift at https://bit.ly/3xLezBk. Proud Stutter is proudly fiscally sponsored by Independent Arts & Media.Want to lean more about what Proud Stutter has to offer? Sign up here to stay in the loop and take advantage of our upcoming events, actions, and educational materials.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Kurt Kessler is a class action attorney who stutters from San Francisco. Kurt is not the only member of his family who stutters. How did that impact him growing up? What's it like going through law school with a stutter? Kurt is currently doing advocacy work with Michael Kidd-Gilchrist's nonprofit, which is aimed at improving positive outcomes for people who stutter.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Elisha Boxer Magnifico and David Catlin are both professors at Northwestern University. Together, the developed "Break The Blocks," an improv program developed at the university to help build confidence in young people who stutter. They delve into the program’s conception, its structure, and the profound positive impact it has had on participants, parents, and student leaders.For anyone interested in signing up for the improv workshop, they can either call: 847-491-3165, email NUCASLL at nucasll@northwestern.edu, or email Elisha directly at elisha.magnifico@northwestern.edu.The flyer can be found at this google drive link.We’re grateful to Elisha and David for sharing their story with us.  -----Big thanks to Proud Stutter's recurring supporters: Jennifer Bolen, Jerry Slaff, Josh Compton, Pablo Meza, Dustin Wells, Alexandra Mosby, Ingo Helbig, Jonathan Reiss, Paige McGill, Wayne Engebretson, Swathy Manavalan, and Martha Horrocks.Learn more about Proud Stutter's impact campaign for its film project at proudstutter.org/impactIf you can become a monthly donor at $10 or more, we’ll give you access to ad-free episodes and bonus Proud Stutter+ content as a token of our thanks! Make your tax deductible gift at https://bit.ly/3xLezBk. Proud Stutter is proudly fiscally sponsored by Independent Arts & Media.Want to lean more about what Proud Stutter has to offer? Sign up here to stay in the loop and take advantage of our upcoming events, actions, and educational materials.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Puneet Singh is a disability inclusion advocate with personal experiences of stuttering, dyslexia, and dyspraxia.Puneet shares his challenges and triumphs, including the creation of his nonprofit and his latest initiative, Green Disability, focusing on the intersection of disability and climate change.Open Call! Submit an essay for inclusion in “Still Speaking: A Collection of Essays on Navigating Life with Atypical Speech”Follow Puneet on LinkedInSign up for Puneet's newsletter.More on Green Disability:1.) https://www.caribbeanlife.com/climate-action-initiative-brings-together-disability-community-worldwide/2.) https://www.youthxyouth.com/blog/how-a-delhi-heatwave-inspired-green-disability3.) https://www.youthkiawaaz.com/2023/10/healthcare-and-climate-change-a-tale-of-survival-with-disability/Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

In part 2 of our conversation with Raphael, we talk about our shared passion of filmmaking.Raphael shares his journey in photography, his involvement with PBS Hawaii, and more creative projects.We’re grateful to Raphael for sharing his story with us.  -----Big thanks to Proud Stutter's recurring supporters: Jennifer Bolen, Jerry Slaff, Josh Compton, Pablo Meza, Dustin Wells, Alexandra Mosby, Ingo Helbig, Jonathan Reiss, Paige McGill, Wayne Engebretson, Swathy Manavalan, and Martha Horrocks.PUBLIC OPPORTUNITY - FIRST 20 PEOPLE TO REGISTER WILL GET TICKETS TO OUR INVITE ONLY EVENT IN LA. BUY THEM HERE.If you can become a monthly donor at $10 or more, we’ll give you access to ad-free episodes and bonus Proud Stutter+ content as a token of our thanks! Make your tax deductible gift at https://bit.ly/3xLezBk. Proud Stutter is proudly fiscally sponsored by Independent Arts & Media.Want to lean more about what Proud Stutter has to offer? Sign up here to stay in the loop and take advantage of our upcoming events, actions, and educational materials.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Raphael Stark is the founder and president of the nonprofit CHATS. Raphael wanted to meet other teens who stuttered in his community but realized there wasn't an organization to help him so he started his own. Find out how Raphael balances being a teen founder and school. This is Part 1 of our conversation. Stay tuned for Part 2 in two weeks!We’re grateful to Raphael for sharing his story with us.  Big thanks to Proud Stutter's recurring supporters: Jennifer Bolen, Jerry Slaff, Josh Compton, Pablo Meza, Dustin Wells, Alexandra Mosby, Ingo Helbig, Jonathan Reiss, Paige McGill, Wayne Engebretson, Swathy Manavalan, and Martha Horrocks.PUBLIC OPPORTUNITY - FIRST 20 PEOPLE TO REGISTER WILL GET TICKETS TO OUR INVITE ONLY EVENT IN LA. BUY THEM HERE.If you can become a monthly donor at $10 or more, we’ll give you access to ad-free episodes and bonus Proud Stutter+ content as a token of our thanks! Make your tax deductible gift at https://bit.ly/3xLezBk. Proud Stutter is proudly fiscally sponsored by Independent Arts & Media.Want to lean more about what Proud Stutter has to offer? Sign up here to stay in the loop and take advantage of our upcoming events, actions, and educational materials.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Randy Panzerino is a clinician, researcher, and person who stutters. He's also a surfer. Randy shares his journey through the challenges and anxieties associated with stuttering and how he found his passion for speech language pathology. Randy has studied stuttering-related anxiety and life partners of people who stutter. He also talk about the therapeutic role of surfing in his life and underscores the importance of embracing one's stutter and the positive impact of authenticity.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy

Ryan Cowley is the author of All the Right Words: My Journey as a Sportswriter Who Stutters.He talks about his early experiences with stuttering, his journey through speech therapy, and how he found his passion for sports writing. Ryan shares his struggles and triumphs, including his initial apprehensions about verbal communication, particularly over the phone, his experience with speech therapists, and his successful career as a writer. He opens up about his motivation behind writing a book, guided by his brother's encouragement, and discusses his current project working on a presentation about commanding respect as a person who stutters. We’re grateful to Ryan for sharing his story with us. Big thanks to Proud Stutter's recurring supporters: Jennifer Bolen, Jerry Slaff, Josh Compton, Pablo Meza, Dustin Wells, Alexandra Mosby, Ingo Helbig, Jonathan Reiss, Paige McGill, Wayne Engebretson, Swathy Manavalan, and Martha Horrocks.PUBLIC OPPORTUNITY - FIRST 20 PEOPLE TO REGISTER WILL GET TICKETS TO OUR INVITE ONLY EVENT IN LA. BUY THEM HERE.If you can become a monthly donor at $10 or more, we’ll give you access to ad-free episodes and bonus Proud Stutter+ content as a token of our thanks! Make your tax deductible gift at https://bit.ly/3xLezBk. Proud Stutter is proudly fiscally sponsored by Independent Arts & Media.Want to lean more about what Proud Stutter has to offer? Sign up here to stay in the loop and take advantage of our upcoming events, actions, and educational materials.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-content

Maya and Tessa share their experiences from 10 days of filming in New Jersey for their documentary. They discuss the challenges and rewards of the project, the impact of stuttering on their interactions, and the support they received from the local community. The episode provides insights into their creative process and the emotional journey of capturing the lives of a family navigating stuttering and parenthood.Support this podcast at — https://redcircle.com/proud-stutter/exclusive-content