For years, no one could explain what was happening to Linde Jacobs’s mother- the answer only revealing itself after an incarceration and a jaw dropping chance encounter with an inmate. In today’s episode, Stephanie talks with Linde, a registered nurse, wife, mother of two and co-founder of the nonprofit Cure MAPT FTD, about caring for her mother, ultimately diagnosed with genetic frontotemporal degeneration (FTD) caused by a MAPT mutation. Linde additionally discusses how her mother’s diagnosis led to her and her sisters’ choice in pursuing genetic testing, how her awareness of familial FTD shapes her daily life and the tremendous advocacy she now engages in to change the future for other FTD families. About Linde Jacobs:Linde is a Registered Nurse, wife, and mother to two beautiful daughters. She has become an outspoken advocate for FTD as a multigenerational caregiver, starting in adolescence with her grandmother. Linde then became a primary caregiver at the age of 22, when her mother subsequently developed symptoms of genetic FTD caused by a MAPT mutation.Fueled by failures of her family’s past while also fearing for the years ahead, Linde decided to take control of her future. She co-founded a non-profit organization, Cure MAPT FTD, engaging in research studies, serving on governmental committees, and has been a featured guest and keynote speaker at multiple conferences, podcasts, newscasts and research institutes. In December 2024, she was featured in a cover story in The New York Times, and will be featured in an upcoming PBS documentary.Everything done in honor of her mother in the pursuit of a better future for herdaughters. Forever fighting.Find Linde & Cure MAPT FTD:https://curemaptftd.org/enThank you to today’s sponsor, The Association for Frontotemporal Degeneration. To learn more about AFTD please visit https://www.theaftd.org/*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving