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Experiencing a Father With Frontotemporal Degeneration as a 7 Year Old Child and Fiercely Advocating for Change and Awareness, with Spencer Cline (Episode 139)
Experiencing a Father With Frontotemporal Degeneration as a 7 Year Old Child and Fiercely Advocating for Change and Awareness, with Spencer Cline (Episode 139)

Experiencing a Father With Frontotemporal Degeneration as a 7 Year Old Child and Fiercely Advocating for Change and Awareness, with Spencer Cline (Episode 139)

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Spencer Cline was only 7 years old when his father was first diagnosed with frontotemporal degeneration (behavioural variant). From a very young age, he witnessed how profoundly this illness affected his father, mother, and entire family. Today, Spencer is a passionate advocate for FTD, dedicated to changing the narrative around the disease and supporting those impacted by it. He recently biked 3600+ miles across America to raise awareness about FTD and continues to speak publicly and educate others, driven by his commitment to help end this devastating illness.In today's episode he talks about his profound experience of love, loss and change.About Spencer:Spencer Cline became familiar with FTD at a very young age, as his father started exhibiting behavioral changes shortly after he was born. His dad was diagnosed with bvFTD when Spencer was seven years old, then was diagnosed with the C9orf72 genetic variant, which is linked to both FTD and ALS. After watching his dad fight the disease until he passed in 2012, Spencer developed a passion for spreading awareness in hopes to find a cure – a passion that has only grown with time. He has organized multiple fundraising/awareness events with the Babson College men’s basketball team, biked across the U.S. in support of FTD in 2024, and was Keynote Speaker at AFTD’s 2025 Hope Rising Benefit. He also serves as an AFTD Ambassador.Find Spencer on Instagram: @spencer_cline22Visit us on our website to see all that we offer for caregiver support:www.compassionincaregiving.comFor more visit our Instagram!http://www.instagram.com/compassionincaregiving

Experiencing a Father With Frontotemporal Degeneration as a 7 Year Old Child and Fiercely Advocating for Change and Awareness, with Spencer Cline (Episode 139)

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